How to contribute data

The Cardiac Atlas Project needs new contributions of clinical data. However contributing new data requires extra steps, including checking and de-identifying patient data to comply with HIPAA regulation. There are strict guidelines to uphold patient data privacy before releasing it to the public:

  1. A local ethics committee or an Institutional Review Board (IRB) approval, which is compatible for data sharing, must be obtained.
  2. The data must be anonymized or de-identified.
  3. No information in the data that can be used to identify an individual.
  4. You must agree to safeguard the key linking of the original subject identifiers to the newly generated ones.
  5. You must not give this mapping to CAP investigators.
  6. You must acknowledge that the free analysis that CAP will provide is not FDA approved for clinical care.

Please read the document policies about contributing new studies for more information:

Other related policies that may affect your data if they are being shared:

Ready to contribute?

Please contact CAP’s Principal Investigators.