Congenital Heart Disease (CHD) Atlas

The Congenital Heart Disease (CHD) Atlas represents MRI data sets, physiologic clinical data and computer models from adults and children with various congenital heart defects. The data have been acquired from several clinical centers including Rady Children’s Hospital San Diego, UC San Diego Medical Center, and Starship Children’s Hospital in Auckland, New Zealand. The purpose of the study is to create a database of cardiac images and computational models in CHD patients that will enable clinicians and scientists to examine detailed ventricular shape and function in individual patients and compare them statistically against a database of other, similar CHD patient examinations. The computational models in this database allow for improved quantitative analysis of ventricular remodeling and changes in function to provide optimal management of CHD.

Cases

Studies include child and adult patients with single ventricle physiology states (e.g. hypoplastic left heart syndrome, tricuspid atresia), tetralogy of Fallot, aortic coarctation, and several others. Imaging and clinical data can be either before or after palliative treatments such as the Fontan procedure or valve replacements.

Availability

You can request to download and use the de-identified images and clinical data using the normal CAP request protocol. A request will be reviewed by the Data Contributors for approval. Please note that in the request form you must select Studies = CHD Atlas.

Data Contributors

  1. Sanjeet Hegde – Rady Children’s Hospital, San Diego, CA
  2. James Perry – Rady Children’s Hospital, San Diego, CA
  3. Jeffrey Omens – UCSD, Department of Medicine, San Diego, CA
  4. Andrew McCulloch – UCSD, Department of Bioengineering, San Diego, CA

Current Collaborators: 

More information:

We are currently recruiting data contributors to the Congenital Heart Disease Project. If you are interested in contributing please contact Dr Kathleen Gilbert or Professor Alistair Young.

Please see the information on contributing data to the Cardiac Atlas Project here.